Social stigmatization in patients with cranial and cervical dystonia
Identifieur interne : 003189 ( Main/Exploration ); précédent : 003188; suivant : 003190Social stigmatization in patients with cranial and cervical dystonia
Auteurs : Martina Rinnerthaler [Autriche] ; Joerg Mueller [Autriche] ; Viktor Weichbold [Autriche] ; Gregor K. Wenning [Autriche] ; Werner Poewe [Autriche]Source :
- Movement Disorders [ 0885-3185 ] ; 2006-10.
Descripteurs français
- Pascal (Inist)
- Wicri :
- topic : Homme.
English descriptors
- KwdEn :
- Adult, Character, Dystonia, Dystonic Disorders (psychology), Facial Expression, Female, Head Movements, Human, Humans, Judgment, Male, Nervous system diseases, Public Opinion, Sick Role, Social Desirability, Social Distance, Sociometric Techniques, Stereotyping, Torticollis (psychology), Video Recording, cervical dystonia, cranial dystonia, facial appearance, stigma.
- MESH :
Abstract
Patients with cranial and cervical dystonia (CCD) suffer from visible involuntary facial, head, and neck movements. Therefore, the social appearance of patients with CCD may be seriously affected and self‐perceived stigma can be a major source of disability. The present study investigated enacted social stigmatization of patients with CCD. In a pilot study, a semantic differential scale for assessment of stigma was constructed and validated. The final scale contained eight items representing personality traits to be rated on a seven‐point scale (−3 negative extreme to 3 positive extreme). Short video sequences (15 seconds) of patients with various types of CCD and age‐ and sex‐matched healthy controls were presented to a sample of 80 biology students (mean age, 19.8 ± 2.3 years). Immediately after presentation of each video sequence, the students were asked to perform stigma ratings. Significant differences between CCD patients and controls were found on all eight items (P < 0.001 for each). CCD patients were rated as less accountable for their actions, less likeable, less trustworthy, less attractive, less self‐confident, more odd and different, more reserved, and more piteous than controls. CCD patients are subject to serious prejudice and enacted stigmatization. There is a need for informing the public about the nature and symptoms of this disorder and a need to support patients to cope with stigmatization. © 2006 Movement Disorder Society
Url:
DOI: 10.1002/mds.21049
Affiliations:
Links toward previous steps (curation, corpus...)
- to stream Istex, to step Corpus: 001B39
- to stream Istex, to step Curation: 001B39
- to stream Istex, to step Checkpoint: 001C48
- to stream PubMed, to step Corpus: 002B48
- to stream PubMed, to step Curation: 002B48
- to stream PubMed, to step Checkpoint: 002A94
- to stream Ncbi, to step Merge: 001790
- to stream Ncbi, to step Curation: 001790
- to stream Ncbi, to step Checkpoint: 001790
- to stream Main, to step Merge: 004502
- to stream PascalFrancis, to step Corpus: 001962
- to stream PascalFrancis, to step Curation: 001359
- to stream PascalFrancis, to step Checkpoint: 001902
- to stream Main, to step Merge: 004997
- to stream Main, to step Curation: 003189
Le document en format XML
<record><TEI wicri:istexFullTextTei="biblStruct"><teiHeader><fileDesc><titleStmt><title xml:lang="en">Social stigmatization in patients with cranial and cervical dystonia</title>
<author><name sortKey="Rinnerthaler, Martina" sort="Rinnerthaler, Martina" uniqKey="Rinnerthaler M" first="Martina" last="Rinnerthaler">Martina Rinnerthaler</name>
</author>
<author><name sortKey="Mueller, Joerg" sort="Mueller, Joerg" uniqKey="Mueller J" first="Joerg" last="Mueller">Joerg Mueller</name>
</author>
<author><name sortKey="Weichbold, Viktor" sort="Weichbold, Viktor" uniqKey="Weichbold V" first="Viktor" last="Weichbold">Viktor Weichbold</name>
</author>
<author><name sortKey="Wenning, Gregor K" sort="Wenning, Gregor K" uniqKey="Wenning G" first="Gregor K." last="Wenning">Gregor K. Wenning</name>
</author>
<author><name sortKey="Poewe, Werner" sort="Poewe, Werner" uniqKey="Poewe W" first="Werner" last="Poewe">Werner Poewe</name>
<affiliation><country>Autriche</country>
<placeName><settlement type="city">Innsbruck</settlement>
<region nuts="2" type="region">Tyrol (Land)</region>
</placeName>
<orgName type="university">Université de médecine d'Innsbruck</orgName>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">ISTEX</idno>
<idno type="RBID">ISTEX:887C3093ED7140912248CBB48A292F1C432DE4E4</idno>
<date when="2006" year="2006">2006</date>
<idno type="doi">10.1002/mds.21049</idno>
<idno type="url">https://api.istex.fr/document/887C3093ED7140912248CBB48A292F1C432DE4E4/fulltext/pdf</idno>
<idno type="wicri:Area/Istex/Corpus">001B39</idno>
<idno type="wicri:Area/Istex/Curation">001B39</idno>
<idno type="wicri:Area/Istex/Checkpoint">001C48</idno>
<idno type="wicri:doubleKey">0885-3185:2006:Rinnerthaler M:social:stigmatization:in</idno>
<idno type="wicri:source">PubMed</idno>
<idno type="RBID">pubmed:16856133</idno>
<idno type="wicri:Area/PubMed/Corpus">002B48</idno>
<idno type="wicri:Area/PubMed/Curation">002B48</idno>
<idno type="wicri:Area/PubMed/Checkpoint">002A94</idno>
<idno type="wicri:Area/Ncbi/Merge">001790</idno>
<idno type="wicri:Area/Ncbi/Curation">001790</idno>
<idno type="wicri:Area/Ncbi/Checkpoint">001790</idno>
<idno type="wicri:doubleKey">0885-3185:2006:Rinnerthaler M:social:stigmatization:in</idno>
<idno type="wicri:Area/Main/Merge">004502</idno>
<idno type="wicri:source">INIST</idno>
<idno type="RBID">Pascal:06-0538580</idno>
<idno type="wicri:Area/PascalFrancis/Corpus">001962</idno>
<idno type="wicri:Area/PascalFrancis/Curation">001359</idno>
<idno type="wicri:Area/PascalFrancis/Checkpoint">001902</idno>
<idno type="wicri:doubleKey">0885-3185:2006:Rinnerthaler M:social:stigmatization:in</idno>
<idno type="wicri:Area/Main/Merge">004997</idno>
<idno type="wicri:Area/Main/Curation">003189</idno>
<idno type="wicri:Area/Main/Exploration">003189</idno>
</publicationStmt>
<sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">Social stigmatization in patients with cranial and cervical dystonia</title>
<author><name sortKey="Rinnerthaler, Martina" sort="Rinnerthaler, Martina" uniqKey="Rinnerthaler M" first="Martina" last="Rinnerthaler">Martina Rinnerthaler</name>
<affiliation wicri:level="1"><country xml:lang="fr">Autriche</country>
<wicri:regionArea>Department of Neurology, Medical University Innsbruck, Innsbruck</wicri:regionArea>
<wicri:noRegion>Innsbruck</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Mueller, Joerg" sort="Mueller, Joerg" uniqKey="Mueller J" first="Joerg" last="Mueller">Joerg Mueller</name>
<affiliation wicri:level="1"><country xml:lang="fr">Autriche</country>
<wicri:regionArea>Department of Neurology, Medical University Innsbruck, Innsbruck</wicri:regionArea>
<wicri:noRegion>Innsbruck</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Weichbold, Viktor" sort="Weichbold, Viktor" uniqKey="Weichbold V" first="Viktor" last="Weichbold">Viktor Weichbold</name>
<affiliation wicri:level="1"><country xml:lang="fr">Autriche</country>
<wicri:regionArea>Department of Hearing, Voice Speech Disorders, Medical University Innsbruck, Innsbruck</wicri:regionArea>
<wicri:noRegion>Innsbruck</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Wenning, Gregor K" sort="Wenning, Gregor K" uniqKey="Wenning G" first="Gregor K." last="Wenning">Gregor K. Wenning</name>
<affiliation wicri:level="1"><country xml:lang="fr">Autriche</country>
<wicri:regionArea>Department of Neurology, Medical University Innsbruck, Innsbruck</wicri:regionArea>
<wicri:noRegion>Innsbruck</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Poewe, Werner" sort="Poewe, Werner" uniqKey="Poewe W" first="Werner" last="Poewe">Werner Poewe</name>
<affiliation wicri:level="1"><country xml:lang="fr">Autriche</country>
<wicri:regionArea>Department of Neurology, Medical University Innsbruck, Innsbruck</wicri:regionArea>
<wicri:noRegion>Innsbruck</wicri:noRegion>
<placeName><settlement type="city">Innsbruck</settlement>
<region nuts="2" type="region">Tyrol (Land)</region>
</placeName>
<orgName type="university">Université de médecine d'Innsbruck</orgName>
</affiliation>
</author>
</analytic>
<monogr></monogr>
<series><title level="j">Movement Disorders</title>
<title level="j" type="abbrev">Mov. Disord.</title>
<idno type="ISSN">0885-3185</idno>
<idno type="eISSN">1531-8257</idno>
<imprint><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher>
<pubPlace>Hoboken</pubPlace>
<date type="published" when="2006-10">2006-10</date>
<biblScope unit="vol">21</biblScope>
<biblScope unit="issue">10</biblScope>
<biblScope unit="page" from="1636">1636</biblScope>
<biblScope unit="page" to="1640">1640</biblScope>
</imprint>
<idno type="ISSN">0885-3185</idno>
</series>
<idno type="istex">887C3093ED7140912248CBB48A292F1C432DE4E4</idno>
<idno type="DOI">10.1002/mds.21049</idno>
<idno type="ArticleID">MDS21049</idno>
</biblStruct>
</sourceDesc>
<seriesStmt><idno type="ISSN">0885-3185</idno>
</seriesStmt>
</fileDesc>
<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term>
<term>Character</term>
<term>Dystonia</term>
<term>Dystonic Disorders (psychology)</term>
<term>Facial Expression</term>
<term>Female</term>
<term>Head Movements</term>
<term>Human</term>
<term>Humans</term>
<term>Judgment</term>
<term>Male</term>
<term>Nervous system diseases</term>
<term>Public Opinion</term>
<term>Sick Role</term>
<term>Social Desirability</term>
<term>Social Distance</term>
<term>Sociometric Techniques</term>
<term>Stereotyping</term>
<term>Torticollis (psychology)</term>
<term>Video Recording</term>
<term>cervical dystonia</term>
<term>cranial dystonia</term>
<term>facial appearance</term>
<term>stigma</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Dystonic Disorders</term>
<term>Torticollis</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adult</term>
<term>Character</term>
<term>Facial Expression</term>
<term>Female</term>
<term>Head Movements</term>
<term>Humans</term>
<term>Judgment</term>
<term>Male</term>
<term>Public Opinion</term>
<term>Sick Role</term>
<term>Social Desirability</term>
<term>Social Distance</term>
<term>Sociometric Techniques</term>
<term>Stereotyping</term>
<term>Video Recording</term>
</keywords>
<keywords scheme="Pascal" xml:lang="fr"><term>Dystonie</term>
<term>Homme</term>
<term>Système nerveux pathologie</term>
</keywords>
<keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Homme</term>
</keywords>
</textClass>
<langUsage><language ident="en">en</language>
</langUsage>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en">Patients with cranial and cervical dystonia (CCD) suffer from visible involuntary facial, head, and neck movements. Therefore, the social appearance of patients with CCD may be seriously affected and self‐perceived stigma can be a major source of disability. The present study investigated enacted social stigmatization of patients with CCD. In a pilot study, a semantic differential scale for assessment of stigma was constructed and validated. The final scale contained eight items representing personality traits to be rated on a seven‐point scale (−3 negative extreme to 3 positive extreme). Short video sequences (15 seconds) of patients with various types of CCD and age‐ and sex‐matched healthy controls were presented to a sample of 80 biology students (mean age, 19.8 ± 2.3 years). Immediately after presentation of each video sequence, the students were asked to perform stigma ratings. Significant differences between CCD patients and controls were found on all eight items (P < 0.001 for each). CCD patients were rated as less accountable for their actions, less likeable, less trustworthy, less attractive, less self‐confident, more odd and different, more reserved, and more piteous than controls. CCD patients are subject to serious prejudice and enacted stigmatization. There is a need for informing the public about the nature and symptoms of this disorder and a need to support patients to cope with stigmatization. © 2006 Movement Disorder Society</div>
</front>
</TEI>
<affiliations><list><country><li>Autriche</li>
</country>
<region><li>Tyrol (Land)</li>
</region>
<settlement><li>Innsbruck</li>
</settlement>
<orgName><li>Université de médecine d'Innsbruck</li>
</orgName>
</list>
<tree><country name="Autriche"><noRegion><name sortKey="Rinnerthaler, Martina" sort="Rinnerthaler, Martina" uniqKey="Rinnerthaler M" first="Martina" last="Rinnerthaler">Martina Rinnerthaler</name>
</noRegion>
<name sortKey="Mueller, Joerg" sort="Mueller, Joerg" uniqKey="Mueller J" first="Joerg" last="Mueller">Joerg Mueller</name>
<name sortKey="Poewe, Werner" sort="Poewe, Werner" uniqKey="Poewe W" first="Werner" last="Poewe">Werner Poewe</name>
<name sortKey="Weichbold, Viktor" sort="Weichbold, Viktor" uniqKey="Weichbold V" first="Viktor" last="Weichbold">Viktor Weichbold</name>
<name sortKey="Wenning, Gregor K" sort="Wenning, Gregor K" uniqKey="Wenning G" first="Gregor K." last="Wenning">Gregor K. Wenning</name>
</country>
</tree>
</affiliations>
</record>
Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Santé/explor/MovDisordV3/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 003189 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 003189 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien |wiki= Wicri/Santé |area= MovDisordV3 |flux= Main |étape= Exploration |type= RBID |clé= ISTEX:887C3093ED7140912248CBB48A292F1C432DE4E4 |texte= Social stigmatization in patients with cranial and cervical dystonia }}
This area was generated with Dilib version V0.6.23. |